Wednesday, April 20, 2011

Another Day In The Life

I'm debating on stopping All arthritis medications until I am given the 'all clear' to resume my iv treatments. My body is having a par-tay with side affects since going back on oral medications as of the beginning of this year and I've about had it. I was always in that 1 or 2% of folks who experienced the rare side affects or allergic reactions to medications, but now, for some reason, I'm experiencing the more common, and even severe, side affects on a regular basis. Dizziness, vision problems (extreme blurriness and blind spots), histamine reactions, loss of equilibrium, drops in blood pressure, kidney function and thyroid function, headaches, ringing in my ears, increased fatigue and 'brain fog,' are just several of the things I've been dealing with throughout. It's scary, defeating, overwhelming, maddening & debilitating. And even those words aren't adequate enough. It also makes me wonder if now I'll react negatively to the iv medication if I go back on it. Hopefully my vision hasn't been permanently damaged. I can't think clearly enough, nor do I have the energy, to figure out another direction to go in. But that's where I'm at right now in this department. (You must have guessed by now something is amiss since I've been posting more photo's than words as of late). I hope you're all doing well!


Cottage Tails said...


Love Leanne

Holli said...

Sorry to hear you're going through all that.... it's so hard.... I feel for ya!

TeamQuickBlade said...

that dizziness and vertigo sensation doesn't seem like a big deal until you get it! it is amazing how much it hinders your day to day and makes you feel like crap!!! i really hope you can find some kind of medicine balance soon! i know you've been struggling with so many side affects for WAY too long!!!

Brenda said...

Oh Jo, I have noticed that you have been quieter than usual. I am so sorry. Get this fixed soon.

I was thinking of you today. I went to Bartram's Garden, a 45-acre property right next to the projects in Southwest Philadelphia. It was really rather lovely. Much of it very natural, but amazing that it has existed for almost 300 years.

Lydia said...

Hugs from California. Once every 6 weeks I go with a relative to the big city (Pasadena) so they can take the car pool lane to get his Remicade Treatment. What a Godsend.

You will be in our prayers.

Thank you for stopping by my California garden.

Jo said...

Thanks everyone!!! Your kind words are greatly appreciated :o)

Brenda, I have been working on this with my doctor for months - it's a process of trial & error :o)

Lydia, Remicade is a God-send and I pray I'm able to go back on it with success! Your garden is lovely, thanks for stopping by mine!